My girl is still doing great! We have to go in on Monday for a “final” appointment for the study. 🙂It is a long one though, EKG, Blood work and I have to bring in a dang urine sample. Don’t get me started on those. Looks like we’ll be on the potty for an hour …
So Lily is on modified year round school schedule. That means for every nine weeks they have 2 weeks off. Only two weeks is more like two and a half weeks plus two half days. Which in more clearer terms, really hard for someone who tries to work a few days a week. Since I …
Yesterdays post was written after being woken up at 4:50am and unable to go back to sleep. Then followed by an AM fight with Andi and taking Lily to 3 therapies by 11am. Then 2 seizures within hours apart, I was a little upset. She ended up having 3 seizures total yesterday which is upsetting, …
Sigh… so Lily has had two seizures today and it is just a little before noon. These are the hard ones that wipe her out. She had one after horse therapy and then just a minute ago before lunch. We have to leave in 30 minutes to go to Music and I am afraid she …
Calm Amongst the Chaos 