Calm Amongst the Chaos

Mama of 5 seeking calm in the chaos

I was going to post about how frustrated I was with Lily’s awful seizure filled weekend, but then last night this happened and I’d rather share this.
Andi asked if Lily could lay in her bed with her. We were in a sticky situation, we are dying for Andi to want to “play” with Lily, but Andi’s bed has no rails and Lily could roll right off it. We decided to make a safe place for Lily on the bed and told Andi that she has to yell for us for any reason. That she has to be in charge with Lily in her room. She said she would.
We lie them both down, they are sharing a pillow and watching cartoons. Andrew and I were checking in on them every 5-10 minutes and all was well. Then all of a sudden we hear “MOM!” “MOM!” so I go running into Andi’s room and Andi says “she’s having a seizure!”. So we comfort Lily during it and I thank Andi for being such a responsible sister and she says to me “mom, I don’t want another sister. I love my sister. I know she can’t walk, but that is ok. I love her.”
I can honestly tell you that my heart melted and ran all though my body. My eyes welled up and I said again “thank you Andi for being such a great sister.” Now this child can fight with me at times and act like she is sent to this planet to drive me nuts, but knowing that her heart is like that, none of that other stuff matters. She is a responsible 3 year old that I know will be a compassionate and wonderful, not to mention strong willed, woman.
I love being my kids mom.

5 thoughts on “"I don’t need another sister"

  1. JuliaLee says:

    Hello! I somehow stumbled upon your blog and just wanted to drop in and comment. It’s awesome how caring and patient you and your family are. I’m a speech-language pathologist so I have a glimpse of the difficulties (and the rewards) of having a child with “special needs”. It’s encouraging to read the day-to-days of a mother who cares so dearly for her daughter in this way. Reading through your blog personally reveals a lot and helps me to see things through the eyes of a parent, humanizing the students and students’ families that I work with. So, thanks for the blog and I wish you the best!

  2. Danielle says:

    This made me start crying at work today. Wow.

  3. Jennifer says:

    Awww..that Andi is too sweet..reminds me of some of the things Emma has said about Adam over the years…these girls will grow up to be great women one day but hopefully not too soon! I miss you over on the CN board but I visit your great blog regularly. Happy Birthday Lily!!Take care, Jennifer and Adam

  4. stella says:

    Okay I am crying now. Miss Andi rocks!

  5. Kelly says:

    Andi, and my Jack, and your new son have such a different childhood experience because of their special needs siblings. And their compassion always warms my heart!I love this story!

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