I am so excited to share “Living with CDKL5” from the AdaptiveMall site!Click here for Lily’s storyA few months back I saw the whole “living with” series on the site and emailed them to ask how we can take part and they sent me a questionnaire and asked for some pictures and I was thrilled …
Me: My period is starting soon Andrew: Doesn’t she know by now we don’t like her? Me: At this point babe we like her much better here than not here Andrew: True
Andi Jane was in Greer with Grandma and Grandpa for almost 2 weeks and I didn’t like it. We missed her so much and totally realized how helpful she is with the other kids. Sunday morning I was very hesitant in sending Lily into her Sunday School class because Andi Jane wasn’t there with her …
New Orleans was awesome! What a wonderful weekend! It was awesome to have some couple time, it was awesome to have a face to face meeting (for 4 hours 🙂 instead of a conference call) with the most amazing women I could ever possibly get to know and get to meet other CDKL5 moms and Rett moms that …
I am overwhelmed. Like to the top and over. I have a million things to do and about 14 hours to do them in. I have to be a couple different places at the same time and I know it will all work out in the end, but the feeling of anxiety I have has …
So many times I see a teenage boy and I think I sure hope my Oliver turns out like him. I am never talking about the star of the baseball field or the winning quarterback. I am always referring to the young man who holds the door for others, a kid who has the sense …
I remember the first day I met Andrew’s Grandma Gloria, she was tall and oh so slender and had the best stereotypical grandma voice I had ever heard. She gave me a big hug and that was it, I was welcomed to the family. I remember visiting her and sitting at her dining room table. …
To say it’s been slow and easy living here in Chandler AZ, I’d be lying. I wonder if I will ever get to say that about our lives. I used to say “I’m board” as a kid, all.the.time. I would call my mom at work in the summer just to tell her that and without …
I just wanted to share a cute picutre my friend Codi took of Andrew and Andi Jane before the Daddy/Daughter Dance at our church a couple weeks ago. Here is a shot I got from my cell phone
I guess it is pretty safe to say I have lived a unique life. I have always stood a head above everyone else, literally, hitting 5’11” in the 9th grade. My first paid job was at 14 years old during my summer stay in NYC modeling for a national magazine, only to be followed by …
Calm Amongst the Chaos 