I only allow myself to do this once, one time a year. One time and not on her actual day. I am allowed to cry. I am allowed to just get it all out. I can have my fit, wash my face and move on and celebrate. But it seems like August 27th every year …
please , please, please, please..
In your holy precious name,
MY will be done.
Amen.
Today is the one year anniversary of the scariest day/weeks of our lives. On this day, April 7th, last year Lily had her spinal fusion surgery. It was an awful day that turned into an awful 2 weeks. Well maybe an awful 6 months. Things happened we never expected. Our fears caught us off guard …
“You know that feeling when your kid does something amazing or incredibly funny or super smart or just something that makes you so proud your heart feels like it will burst? That’s what’s it always feels like to be Lily’s mom. It’s been a good day. A very good day. Can’t believe she is 12.” …
I wonder if I didn’t have facebook I would blog more. I am sure I would but since I do have facebook..well you know. A 3 sentence status update usually trumps a long drawn out run on sentence of a blog I tend to do. So that’s that.I have had so much I wanted to …
Many years ago I had a doctor tell me “When you have a child with such severe mental retardation they have many autistic traits.” This was an answer to my “does she have autism too?” question.Gulp.I saw the word mental retardation on a report of hers once, but I never heard the words come flying …
Hope looks like a million different things to a million different people. Hope is in a rainbow, hope is in a new day, hope is even in a jar at the mall. Hope can look like something insignificant to me, but the world to someone else. What does my hope look like? My hope looks …
July has been one action packed month! I mean seriously, action packed! It was like a movie with Matt Damon and lots of guns and fast cars…. Or it was like me running all over from hot humid AZ doing a billion different things all the way to Northern Colorado doing a bazillion things. Very …
Lily was granted a Make A Wish some time last year. I can’t tell you what we had for dinner last night so don’t judge. I recently thought it was still April, but then realized the sweat dripping off of strange parts of me which zoned me in on the fact that it is certainly …
Spring breaks are long here in the chandler unified school district. Very long. They go to school for 9 weeks and then take off 2 weeks and 2 days til summer and that is when this whole thing pays for itself, summer break is only 7 weeks. Boo ya. Is that how to spell boo …
Calm Amongst the Chaos 