I wonder if I didn’t have facebook I would blog more. I am sure I would but since I do have facebook..well you know. A 3 sentence status update usually trumps a long drawn out run on sentence of a blog I tend to do. So that’s that.I have had so much I wanted to …
We are finally home after a crazy few weeks. Holy smokes we were living like rock stars! Well rock stars that travel to remote places and go to bed at a decent time. And don’t do drugs. Nor sing. Yeah we were just like rock stars.After Lily and I shacked up at the hospital for …
Now Andi Jane is the 4th member of this family to get strep. Like are you kidding me? And of all the weeks she gets sick the week of VBS. She has loved VBS, she has gotten so much out of VBS. (VBS is vacation bible school that goes all week long, it is at …
Trying to wrap up my weekend at the Rett Syndrome Family Conference is not an easy task and not a task I have been interested in doing. Well I take that back, I really want to write it, I just want it written and posted with out me putting any effort into it. Is that …
I write this sad entry, pouring out my heart, and then disappear. I assume since you all didn’t see me on the evening news you figured I was fine, so thanks for that. But man what a week. What a week. I look back at weeks like this and wonder how we survived and then …
Ok this economic crisis is really starting to get on my nerves.A couple days ago I got a letter from the place Lily has gone to summer school for the past 4 summers. It has been a safe place to send her. A fun place to send her. A place I trusted her to spend …
Wow has it ever been eventful around here. If I am barely able to get on Facebook, you know I am swamped! Not to mention Craigslist! Sigh…We got Lily totally off Topamax and boy is she energetic and hungry! LOL! She is still having myoclonic clusters more now that she is off, but it is …
Lily started her first day at summer school back at the Foundation for Blind Children.She is in the SHARP program which goes all day (8:30am-3pm) and it sounds like it will be a blast with swimming, bowling, Gymnastics, etc. I am happy she has something fun to do while out of school.Andi is going to …
Calm Amongst the Chaos 