Last night in the car Andi I were talking about maybe going on a hike if the weather clears up this nice long weekend we have ahead of us, and she said “oh yes please!” and I then said “we would have to see if Grandma would be able to hang with Lily while we …
For 7 years Lily has been on Sabril. She was on it before it was called Sabril. We used to call it Vigabitrine. We used to have to get it from a Canadian pharmacy, it wasn’t FDA approved for many years.Now that it is legal here it is cheaper for us to get (ie insurance …
Spring breaks are long here in the chandler unified school district. Very long. They go to school for 9 weeks and then take off 2 weeks and 2 days til summer and that is when this whole thing pays for itself, summer break is only 7 weeks. Boo ya. Is that how to spell boo …
This morning was a little different from the others. For starters I woke up to Oliver’s cute face. Oliver has been having a really hard time falling asleep in his new room and last night fatigue won out for me so when he came into our room and asked to cuddle I said “come here” …
Unfortunately I heard what I knew I would hear.Lily went from 23 degrees to 45.We are going to brace her with a softer brace with pretty lax rules when she is home so she can roll around on the floor still.Got rx to go back to wheelchair clinic, I called to schedule, but gal was …
I posted on FB that I want a vacation and everyone seemed to 2nd, 3rd, 4th etc the idea. I see that I am not alone, when you have spring break for 2 whole weeks and you go nowhere then look on the social media sites and see people sharing vaca pictures it kinda bums …
Whenever I find myself chatting with a second grader I am always surprised by how bright they are and I enjoy every minute of our conversation. Then when we stop talking and I go along my way, my heart starts to sink a little bit. I can’t help but feel sorry for the greatest loss …
Ok this economic crisis is really starting to get on my nerves.A couple days ago I got a letter from the place Lily has gone to summer school for the past 4 summers. It has been a safe place to send her. A fun place to send her. A place I trusted her to spend …
We are trying a new med with Lily. Banzel. So far ehh, ok. I had to go twice as slow as the Dr. recommended with getting her dose up. She is still at less than half the therapeutic dose and she is sleepy, crabby and has no appetite. I still want to go up to …
Calm Amongst the Chaos 