Calm Amongst the Chaos

Mama of 5 seeking calm in the chaos

We are trying a new med with Lily. Banzel. So far ehh, ok. I had to go twice as slow as the Dr. recommended with getting her dose up. She is still at less than half the therapeutic dose and she is sleepy, crabby and has no appetite. I still want to go up to see if it helps, the med is for the drops and the jerk (atonics and myoclonics). Those are just out of control right now so I do want to increase this med to see if it helps, but for heaven’s sake, why can’t they make a seizure med that doesn’t ruin these poor kids lives? It seems so unfair to have to decide between seizures and really crappy side effects. Blah.

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