I love the movie My Best Friend’s Wedding. I am pretty sure I saw it in the theater multiple times and then on loop on VHS. I love the characters, the actors (hello! Julia, Cameron, Dermot and Rupert), the humor, the music, the story line. It’s just chick flick perfection. Of course the Oscars weren’t …
We saw a different neuro last week. I met Dr. N when I went into TGen and had a meeting in a conference room with a table longer than my house. I met 4 researchers who were interested in CDKL5. I don’t know how we are moving forward, but I was thrilled to speak with these guys and just …
There is never enough hours in a day nor money in the account, right? It sure seems this way. But I know we are blessed. So blessed. I have so much I want to share and write about, but my time is short. We are almost done moving. A few things left in the old place we …
Deuteronomy 6:4-9 Talks about imprinting the commandments on our hearts, impress on our children, vs9 says Write them on your door frames of your houses and on your gates We are moving. I have made slight mention to the fact recently, but it is getting more and more real and I think it is actually going to …
Andi Jane had been asking all week to sleep in the living room with Lily on the floor. I finally let them do it Saturday night and they were so cute. Until 1am Lily was completely off the blankets rolling around and talking to herself so I put her in her bed only to have …
We are finally home after a crazy few weeks. Holy smokes we were living like rock stars! Well rock stars that travel to remote places and go to bed at a decent time. And don’t do drugs. Nor sing. Yeah we were just like rock stars.After Lily and I shacked up at the hospital for …
We have been working at this garden, not only growing stuff but we are composting too! I had no idea how much fun gardening can be! Showing the kids how food grows is such a fun experience and it is a great way for us all to be outside together each evening, watering and taking …
I write this sad entry, pouring out my heart, and then disappear. I assume since you all didn’t see me on the evening news you figured I was fine, so thanks for that. But man what a week. What a week. I look back at weeks like this and wonder how we survived and then …
I’m sitting here at 9:52pm, just barely got the boy to sleep (what was that all about?) and the house is quiet. Andrew went up north again and this time took with him Andi Jane AND Lily. It’s a nice break, but honestly, I’m bored. I had to do a lot of cleaning to get …
Man, seriously. I think I like facebook so much because my status updates are like a one sentence blog and let’s face it that is all I have time for these days.I really have no time. But since I am here and Oliver is napping (although he went down 1 hr 45 min ago and …
Calm Amongst the Chaos 