Calm Amongst the Chaos

Mama of 5 seeking calm in the chaos

Hope looks like a million different things to a million different people. Hope is in a rainbow, hope is in a new day, hope is even in a jar at the mall. Hope can look like something insignificant to me, but the world to someone else.

What does my hope look like? My hope looks like a big black computer screen. This isn’t just a computer though, this black screen can change our world forever. It can change our dark wordless world with our 11 year old daughter, to a world of colorful communication.

Lily has never spoken one word in her 11 years. Through therapies, specialist, schools, prayers and begging at God’s feet for just one word, mama maybe? To our avail nothing has ever came out. Even sign language is a bust with a child who has no hand control.

To love our daughter is easy, to care for her is what we do, but to know what she loves, how she feels, why she cries, is an impossible heartbreaking journey.

But now we have hope. Now we have a computer that reads her eyes. All she has to do is look at what she wants on the screen and her words will come to life.
Her whole world will open up and we will meet Lily on a level we have never known her before.

Will it be hard, yes, there is a lot to learn. Is it scary, yes because we have put hope in things that never came to fruition, but this is different. This is tangible. This is something I have faith in and this is something that even if the phases are small, she can let us know what she wants and we can stop assuming what it is. She can now go Trick or Treating with her brother and sister in a week and be the one who actually gets to say “Trick or Treat”, all because of this big black computer screen that may only look like a computer to others, but to us it is filled with all our hope.

3 thoughts on “Hope

  1. Jamie says:

    Love this post! Can't wait to read more about this computer and how well Lily does with it!

  2. MoultonMinds says:

    I was thinking about this post and remembered a book called Out of Mind by Sharon Draper. It's fiction, but very powerful writing. It's basically about a girl with a severe form of cerebral palsy who gets a voice thanks to a computer. It's told from her perspective.

  3. Rebecca says:

    SO happy for your family, what these days will feel like I am sure will be incredible!

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