Hope looks like a million different things to a million different people. Hope is in a rainbow, hope is in a new day, hope is even in a jar at the mall. Hope can look like something insignificant to me, but the world to someone else. What does my hope look like? My hope looks …
You ask me what do I crave the most from Lily and I will tell you it is her voice. Words. Humor. Stories. Her take on situations. Her story, her day coming from her lips.I have always said and will continue to say that CDKL5 robbed the most important part of human interaction from her …
Sitting around a table around 10:30pm on a Friday night with some amazing women in my life we talk about kids, and about being moms and the struggles and triumphs we go through. As I listen to some stories my heart swells and I wonder “how does she do it?” Then one mom says “I …
“Show me someone who has done something worthwhile, and I’ll show you someone who has overcome adversity.” – Lou Holtz I wrote this http://lilyannablu.blogspot.com/2011/01/2010-in-depthmetaphorically-of-course.html (trying to click link this is killing me!) back in January of 2011. I wrote it because I desperately wanted to share what we had been through in our marriage, yet …
God is so good! This morning I found 2 pills that we were almost out of in a place that I swear I never put them, so she got her AM dose! Then the package came in todays mail even though they told me yesterday it probably wouldn’t be here until Tuesday!Amen!!!So that is a …
Just wanted a happy post and let everyone know the grand mals are not back! They were here that day Lily decided sleeping wasn’t for her and left when she finally started to sleep peacefully again. We have keep this as a top prayer for us and it appears to have been answered. All us …
To say time is not on my side is an understatement, time isn’t even in my same area code.I am chasing my tail here constantly and can’t get anything done.I plea bargained with Andrew last night and let him go to bed at 7pm (yes I said 7pm) IF he would take Lily to hippo …
Calm Amongst the Chaos 