Shriners | Calm Amongst the Chaos

Up, Up and Away

Kim Nothdurft

June 20, 2008

So we upped the study drug again, and so far so good. I don’t want to jinx it, but maybe this is the right dose. It is a prety high dose, no wonder, but so far so good.Lily and I leave on Sunday to head on to SLC. I will take a laptop with me …

Lily and this drug

Kim Nothdurft

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June 16, 2008

I left a little message for the neuro this morning because I am getting totally annoyed. Yes the new med has almost all but cured her drop seizures, that is awesome, but she also is having a huge increase in grand mals. She is up to 3 a day and they last 30-60 seconds and …