Calm Amongst the Chaos

Cancel that nomination you all had for me for Mother Of The Year. Due to the fancy wide world web I saw that we would be waiting a long time for the school bus next week. Lily starts school on Monday the 28th. Oops. I still don’t know who her teacher is. I think I know after looking on the schools site, but I am not 100% sure. I have to figure out care for her for one more week. Her nurse can do two days, but she is going out of town so I’m going to call and see if they have anyone that can fill her spot. It’s tough working with her. I hate for her to lie on my office floor. She is so big she rolls into everything and then cries. She needs to be at home, it is too boring at work.
Yesterday she had a good day. She had just one seizure and hardly any drops and her PT took her swimming for aqua therapy and Lily had the time of her life. PT said she was a different kid in the pool. Lily loves swimming! Especially in our bath water temp pool. No one else likes it that warm, but princess Lily finds it right to her liking.
So we are hoping things are evening out right now. One change at a time is the right thing to do.