Calm Amongst the Chaos

Activia…WOW! Lily has always had a problem with pooping. She is most often constipated, but there are times where she is the exact opposite, usually one or the other. We have tried pretty much everything. Most supplements make her let’s just say, a big mess. I hate having to use suppositories and I also hated to see her struggle. Well I think we found the perfect thing for our bug! Activia! Thanks Jamie Lee Curtus! J
That stuff really cleaned her out at first, but now she is just going daily and it isn’t rock hard poops, they are comfortable for her. I know this is sounding gross, but this is for you other special needs moms in case you are looking to try something for your kid’s poops. It doesn’t help that I was thinking of cutting out dairy this summer, just to mess with her diet a bit, but I think we should keep her on that stuff. It seems the better she poops the better she eats, a nice circle. I may still take her off straight milk. I don’t know yet. There are other CDKL5 kids that seem to do real well on modified diets and I would like to try it. We’ll see. We know how much our girl likes sweets and I’d hate to deprive her, but if we could help her that would be nice too.
We are still in the Topamax wean and it is going great! No more seizures than usual. She still is having her drops and jerks, but she’s always had those. She is NOT sleeping at night however and I am pretty sure that might be connected. I’m sure she will get adjusted.
Andi is surviving on a solid diet of Otter Pops right now. Gymnastics is going well. She had her first class in the upper level and she was awesome. Andrew has taught her how to flip into the pool. Yes that is what I said. So when she had to flip into the ball pit she did it like it is an old trick of hers. I signed her up with our park and recs for a ballet class. She is so excited!
Oliver was 16 weeks yesterday and finally mastered the back to tummy roll! Boy was he happy! He got the sloppiest grin on his face when he did it! He has been working on this for a week now. He has been rolling tummy to back for months now, but he would get so mad when he ended up on his back. I think that is why he was so happy to have gotten back to his tummy. He will be crawling before we know it. He is scooting around. He is laughing all the time. While he still does cry in the car seat, we are down to about 50% and it isn’t 100% of the time. I was telling Andrew, “I don’t know if it is because he is my boy, my baby, or what but I REALLY enjoy Oliver”. Not that I didn’t enjoy the girls, but Lily’s infancy was spent in hospitals, dr. offices, with therapists, social workers, state employees, etc. I was spending so much time trying to fix her, enjoying her was hard.
Andi was impossible to enjoy b/c she cried all the time. She wanted to only be with me and she drained me.
Oliver is just so cuddly and sweet! We had a tough first few months with him and I am pretty sure they were tummy issues; he still spits up all day long but no longer seems to be in pain. He loves to eat and eats often! It is so cute the minute I pop out my boob he gets this big grin and goes to town. Maybe it is ingrained in him to smile when he sees boobs? He is a boy. He still isn’t sleeping so great. Usually first 4 hour stretch then every two hours until around 8 or 9am. But I genuinely think he is hungry when he wakes, I can hear his tummy growling! Last night we let him try some rice cereal and he ate it like it was going out of style! I guess I will have to start feeding him more than just booby juice. Boys sure are different than girls. But you want to know Andrew’s response to my comment about enjoying Oliver? He just said that I am getting old.
Mommy is also doing something fun this summer! I enrolled myself in a how to make a children’s book class. I have my idea and am so excited to learn how to execute it. Even if I am the only person who reads it, I can’t wait to make it! That starts in two weeks. I wasn’t going to do it since it is 2 hours every Wed night, but Andrew encouraged me to do it and I am so excited!
Lily gets out of school on Wednesday and we go to Colorado on Thursday!