Calm Amongst the Chaos

Mama of 5 seeking calm in the chaos

Well things are a bit crazy at the moment. The fundraiser is moving along. School starts tomorrow. Andi has her lunch packed and in the fridge. We won’t know if she can ride the bus until August when they know the routes for sure and if there is room for her. It will not be cool if she can’t ride the bus, but we will adapt like with everything.
I’m not in the greatest of moods right now. Nothing to post about. Feeling a bit blah.
Lily’s seizures are out of control. She did good for a week after we upped the meds in the hospital, but they just came back. I am finally just realizing this is how CDKL5 and LGS works. Periods of seizure control and periods of not. Par for the course. Just sucks.
I wonder what Ollie and I will do during these days. With out Andi entertaining him he may not know what to do.
I can’t believe this is the night before Andi starts Kindergarten. I can’t believe Lily is in the 3rd grade. This seems so surreal.
Photos will be posted tomorrow!

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