I am not sure if I made an offical announcement but now is a better of time than any…..
I am now a board member for the IFCR (International Foundation for CDKL5 research)!
I’m thrilled to be a part of these special woman doing something to make a change for the future of CDKL5. I won’t push things on you in every post. You all know that is not my style. But I did want to let you all know we have a store that is currently selling hand-blown ornaments that are stunning! Each one is etched with either hope, love or cure cdkl5. It is a wonderful way to support our foundation and honestly they are beautiful ornaments!
We also have other fun items that show your support!
Anyway, just check it out 🙂
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CDKL5 Store
Calm Amongst the Chaos 
Im SO buying that three pack! I met David Frame last week! He was visiting Ca and came to Katie's Clinic (I volunteer there) -what a great guy! congrats on your new position!