Awhile back our board (IFCR) received a request/invitation for one of us to attend a conference a family was holding in Albuquerque, NM. Considering our board consists of folks much further east of New Mexico than I am west of it I said I’d go. Not having a clue as to what I was going …
I am not sure if I made an offical announcement but now is a better of time than any…..I am now a board member for the IFCR (International Foundation for CDKL5 research)!I’m thrilled to be a part of these special woman doing something to make a change for the future of CDKL5. I won’t push …
I am so excited! I booked a trip to Colorado Springs for Memorial Weekend! All by myself! Why, you ask? Because that is where the Rett Syndrome Family Conference is! Bringing my family is not an option, so Andrew is staying home with the kiddos. The coolest thing about it all is that I was …
Calm Amongst the Chaos 