I’ll be honest, it’s been a rough week. Lily has been having up to 8 good size seizures a day. And uncoutable little ones. Finding relief seems impossible and I had a mini breakdown. No worries, I have them quarterly. I have found the old bitter me pop up and like those gopher games I have to hit her on the head to get rid of her. But today is different. Seizures aren’t, but today is. Because today Lily and I sit on a front porch swing in one of the most beautiful places I know and she rocks. I kiss her she laughs. The wind blows her face ad she smiles. I know that dispite all we can’t change, the things we do make all the difference in her quality of life. Our job is to make her time on earth as wonderful as possible and that fact has never been more clear to me than right this very moment. I write this for nobody but myself. A reminder back in the real life of what is most indeed most important.
🙂
I HATE seizures! I'm sorry that you & Lily have to go through that!
You are an amazing mom. Lucky Lily to have you. oh yea, and Andi and Oliver too. 🙂