Calm Amongst the Chaos

Mama of 5 seeking calm in the chaos

Lily suffers from CDKL5 disorder. No new news to all our friends and family, but it is June and this was our first time acknowledging June as CDKL5 Awareness month.CDKL5 disorder sucks. Really really sucks. Takes away everything you every thought of your child’s future. It takes hopes and dreams and reconstructs them into something …

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