Lily has been having these intense crying spells that seem to never end.She cried Tuesday from about 3-6 then passed out. Yesterday it started at 2 and lasted until about 6:30 when she passed out and today she was doing good, I took her to school for a bit, but got called two hours later. …
Here is information on what I will be talking about: VNS CLICK HERE(back story)When we checked her VNS last time at the neurologist he said if was no longer working. He hadn’t checked it the past couple times we went for a visit so when it stopped we have no idea. I do know that …
We have to check in at 6:45am at St. Joseph’s hospital Tues Oct 20th (my dad’s birthday) for the VNS replacement. I know she will be fine, she has had surgeries before, but I just hate to think of her uncomfortable and in pain. Back when she was going through testing and surgeries, being put …
I promise to make a post about us and soon, it has been quite a week! We got back from Colorado at 9pm on Sunday and had to be at church every day this week at 8:30am for VBS. I watched the leaders babies so I could be with Oliver and help out. I have …
Wow! May 19th? Seriously? Lily has one more “full” week of school, “full” because Monday is Memorial Day, but she has that week and half of the next. She gets out June 3rd. I can’t believe another school year has been completed. I would be excited about summer school, except well the school says Lily …
Yesterdays post was written after being woken up at 4:50am and unable to go back to sleep. Then followed by an AM fight with Andi and taking Lily to 3 therapies by 11am. Then 2 seizures within hours apart, I was a little upset. She ended up having 3 seizures total yesterday which is upsetting, …
I left a little message for the neuro this morning because I am getting totally annoyed. Yes the new med has almost all but cured her drop seizures, that is awesome, but she also is having a huge increase in grand mals. She is up to 3 a day and they last 30-60 seconds and …
Calm Amongst the Chaos 