Calm Amongst the Chaos
Mama of 5 seeking calm in the chaos
I love this video I took of Andi last year after gymnastics. She is such a goof.http://specialmommy.blogspot.com/2008/09/when-you-have-kid-like-this.html Lily is still under the weather, but hey it only took Walgreens 4 days to get the Tamiflu in! Just a shade under a decade. I started her on it today. Her fever is still low grade but …
I still have not gotten the report from U of Chicago. I want to be able to put Lily’s exact diagnosis on this blog so others can do searches on it, but I don’t want to until I have the exact words.The exact mutation/deletion.We went to our geneticists appointment yesterday, well Lily’s apt. and I …
I just uploaded some videos and wanted to share. The first is what dad does when I am gone. He is always looking for a short cut in everything and that even meant giving Lily her drink… The second is really dark and I apologize, the only digital recorder I have is my sony cybershot …
Lily has been so off since that seizure she had on Wednesday. She woke up so happy on Thursday then I said how she was upset Thursday night. Then yesterday, Friday, her teacher called to say she is giggling for no reason and it is a different giggle. When she got home Friday she was …
Calm Amongst the Chaos 