We got a call from the school nurse today. They said Lily was in the stander and turned super pale and her lips were light blueish. Ack! The nurse said she was really sleepy when they brought her into her office and she had a hard time waking her up. But she did wake up and went back to class. I called the class room and they said she was resting in the beanbag chair and had a snack. Sigh. I don’t know if this is a real problem or what. Honestly I am a fainter. I’ve done it more times then I could count. In my modeling days it was embarrassingly ridiculous. I’ve tumbled down concrete stairs, off a tree stump (in stilettos nonetheless), on a taped show (thank the Lord it wasn’t live), in a studio, must I continue? It was a combo of heroin and anorexia.
Ok I know that was what some of you were thinking. It really was a combo of low sugar, low blood pressure and standing with locked knees. It is embarrassing and never helped get stereotype of me puking in the bathroom after munching off the craft services table though. But maybe just maybe could Lily not only take after my long skinny legs, but also my fainting issues? Could it possibly be something that simple? I mean put me in a stander for 5 minutes with my knees locked and I can promise you a show as well. So obviously I will mention this to her Dr. but I am hoping this is the case. I’m sure they will want a bunch of blood drawn, but since we do (well we freaking better) have the VNS surgery coming up I will just ask them to draw her blood then.
Sigh. I just love this beautiful girl and I am praying that she is a little weird like her mom and this has nothing to do with stupid CDKL5.