Calm Amongst the Chaos

Mama of 5 seeking calm in the chaos

July has been one action packed month! I mean seriously, action packed! It was like a movie with Matt Damon and lots of guns and fast cars…. Or it was like me running all over from hot humid AZ doing a billion different things all the way to Northern Colorado doing a bazillion things. Very …

Continue reading

Spoiler Alert! Cherie Dell comment #22 you are the winner!!!! But you didn’t leave me your email so can you please email me at knothdurft at gmail and get me your info and I will love to get you that necklace! 🙂 Thank you everyone!!! Let’s do it again real soon!

In honor of Rare Disease Day for NORD, celebrating their 30th Anniversary this year next month, I would like to get some awareness out about the rare disease that has turned our family upside down.For my family and friends who often read this blog already knows LilyAnna Blu suffers from CDKL5. CDKL5 is a gene that …

Continue reading