Calm Amongst the Chaos

Mama of 5 seeking calm in the chaos

Yesterday Lily woke up happy and continued to be so the entire day. She had so many drops, yet she was still happy. I think we almost broke a record with 19 drops and a grand mal, yet it wasn’t until that grand mal in the bath tub that brought her spirits down. It was a short one, less than 30 seconds, but then she just had drop after drop and that made her sad.
Earlier that day we, Andrew, Andi and I, joined Lily’s class, as well as it seemed every class in the entire state of AZ, at the Arizona Science Museum. It would have been much more fun had it not been so packed, but I always love to visit Lily’s class. I just love everyone in that class, the teacher, the aide, the kids. Lily was happy the entire time and it was fun to see her so happy and interactive.
After Lily’s bath and the seizures, I lied her on the floor and went to get her lotion and diaper and jammies, the minute I lied her down she cried, so I ran. I came back into the room and Andrew is whispering in Lily’s ear and she is almost asleep. She was incredibly relaxed and serene. I wonder what he as saying to her. So I massage her, dress her and pull her long, wet hair back, and put her in her bed. This time though, I played “I love you this much” for her on CD. She was so relaxed and out within 5 minutes. Sweet thing.
I don’t know what it is about Lily, but no matter where she is sleeping, every time I see her sleeping I just want to jump into bed with her. She makes every bed look cuddly, soft and the best place in the world to lay down your head. I have a feeling it has nothing to do with the pink car bed with pink and purple bedding. I think it has a whole lot more to do with whom is in that bed.

2 thoughts on “Field Trip

  1. This comment has been removed by a blog administrator.

  2. Shannon says:

    i feel the same when i look at my gage sleeping.i am so sad to hear about all of the seizures lily’s been having…it makes me so angry with the study and the dr. and more so that they feel it necessary to give children like ours a unbelievably angry.i’m glad you guys had a good field trip with lily and her class.

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