Very late in sharing these, but Lily’s PT works for this awesome agency that does these great little parties for their families. This past June they had Christmas in June and we had a great time at an ice skating rink. It was such a nice escape to leave 110 degrees and walk into a …
Cancel that nomination you all had for me for Mother Of The Year. Due to the fancy wide world web I saw that we would be waiting a long time for the school bus next week. Lily starts school on Monday the 28th. Oops. I still don’t know who her teacher is. I think I …
Lily started her first day at summer school back at the Foundation for Blind Children.She is in the SHARP program which goes all day (8:30am-3pm) and it sounds like it will be a blast with swimming, bowling, Gymnastics, etc. I am happy she has something fun to do while out of school.Andi is going to …
Same drug, new study. This study is called open label and the Dr. can rx what she needs. Well finally folks we are getting somewhere! Last week he rx’d her 5mg 2x a day and although there was a small improvement, it certainly wasn’t sing songs of praise worthy. But this past Tuesday he put …
Yesterday Lily woke up happy and continued to be so the entire day. She had so many drops, yet she was still happy. I think we almost broke a record with 19 drops and a grand mal, yet it wasn’t until that grand mal in the bath tub that brought her spirits down. It was …
Lily went on a field trip last Friday bowling with her class mates. Her teacher and aides are so cute to send me a print out of Lily’s total butt kicking.That’s my girl!!! Check out the other names, she is the only girl! *Click on image to enlarge*
Calm Amongst the Chaos 