2010 you brought me some of my darkest hours. brought deep pain. you brought so much change. change that never would have came without that darkness. so while i will never say i ever liked you, i simply survived you. but i am better because of you. 2011, let’s not be so deep. keep it …
Yesterday I was talking to Andi about guilt. I threw the word out there and she questioned what it was. I explained it as a feeling you get in your tummy when you know you are doing something either wrong or not nice. She said she understood and that was the end of the conversation.Cut …
I am so proud to have been a part of this wonderful charity event for Phoenix Children’s Hospital and so thankful they interviewed me and let me “plug” CDKL5.Watch and see how cute the kids are all in the fashion show!A couple days left, keep voting!!! Lily had 2 large tonic clonic seizures today amongst …
I truly believe December is the most wonderful time of the year. I love everything about it. I love the hustle and bustle, I must because why else would I still be shopping Christmas Eve Eve? I love the crabby people who you run across and the happy happy joy joy ones too. I love …
Ok I have never done a contest before, but in efforts to win Pepsi Refresh this month I am going to do one. My lovely friend Amy over at http://www.babiesnbags.com/ has offered two $25 gift certificates to her awesome online store in efforts to raise money for CDKL5 Research. Babies ‘n Bags is a local …
If a song is ever to bring a smile to my face it is this one what doesn’t bring a smile to my face are all the dumb spam comments. so uncool.
I found out I was pregnant December 2001 and shortly after those two lines were pink I found myself all over the internet. I didn’t know the first thing about why my boobs hurt, why I was crying at a drop of a hat and the next minute attempting a drop kick to Andrew and …
Ok back to splash for a cure a wonderful woman named Christina who is creator and owner of a fabulous children’s clothing line called Ivanhoe Couture donated a sweet tutu outfit to our raffle. Well she alone set up a fundraiser for Phoenix Children’s Hospital at a luxury resort in Paradise Valley that included a …
So after almost a year of denials and appeals and with the help of Lily’s most awesome PT she finally got her TAOS Orthotic System! Now this thing is incredibly different for Lily. She is not used to be all strapped in. Not used to heavy shoes. Not used to standing so freely. This was …
I’m gonna finish up this thankful November ala Erica over at the Robertson Family (mom of sweet Avery with Rett Syndrome) and do this list style, because yes I am thankful for the important things like my kids, my home, my family, my life, but there are so many non important yet essentials to my …
Calm Amongst the Chaos 