I turned 33 last week on the 19th. And while it wasn’t my favorite day this year, it was ok. I’ll have others. My day started nice enough with Alex the Elf sitting on my new Kerug coffee maker. I always thought they were cool but never thought we’d own one. I had been fine …
We go to a pretty awesome church. Like the most awesome. Just this past Sunday we came to church knowing that we will leave barefoot. This was our 3rd Sept doing this. We did have fair warning and came to church with our shoes on, plus a bag full of others, and we left them …
I knew in April we’d have one good-bye to say in May. What I didn’t know is we’d have 4 good-byes in May.Yes I am still working on “The Story of Us” I’ve spent hours on it and still am not finished. Will share later.But back to May good-byes.Two caregivers whom we really loved left …
We got bumped! Surgery will now be Monday. I gotta be honest, I was bugged by this. I got this phone call AFTER I got the phone call saying our Neuro is moving to Oklahoma on May 25th(!?) and I got that call AFTER finding out we never should have done business with a friend. …
When we said goodbye to 2009 we said 2010 couldn’t possibly be worse than its predecessor, we were hit hard financially considering our income solely survives on construction. Mostly new home construction at that, and we all know the crash we had. We knew times were still tough, but things had to get better, right? …
2010 you brought me some of my darkest hours. brought deep pain. you brought so much change. change that never would have came without that darkness. so while i will never say i ever liked you, i simply survived you. but i am better because of you. 2011, let’s not be so deep. keep it …
Anyone watch Modern Family last night? Gloria having to celebrate dates of everything. First kiss, first time she cooked for Jay, etc. And of course Jay, the husband, having no clue as to what they are celebrating that night just goes along with it. I had to laugh, well I always have to laugh at …
Good bye Nurse Jennie. You came when Lily was 4 and still in pre school. Andi Jane wasn’t yet 2. You saw our family grow from 4 to 5. You saw us at our best and at our worst. You mourned with us the loss of our beloved dog Hailey, you were a nurse to …
I haven’t posted much lately, not for a lack of things going on and not for a lack of words. I was honored by being asked to write one of the letters welcoming families to the CDKL5 diagnosis on the new CDKL5 website (set to launch end of March!! No worries I’ll link it up …
Calm Amongst the Chaos 