We are finally home after a crazy few weeks. Holy smokes we were living like rock stars! Well rock stars that travel to remote places and go to bed at a decent time. And don’t do drugs. Nor sing. Yeah we were just like rock stars.After Lily and I shacked up at the hospital for …
So here I sit on Lily’s hospital bed while she sits in her wheelchair. We like to switch it up, you know keeping it exciting. It is 8:30am and we are on hour 48. I’ve enjoyed about 4 rounds of Family Feud, 8 rounds of Solitaire, 4 rounds of Scrabble, kept up with status updates …
Here is our summer vacation going on right now.
I always do this, wait too long to post then post a monstrous post that only my dear mother will read all the way through and do it again and again. Sorry. I used to post while Ollie napped and the girls were in school, but you know summer break…. Kinda like working 24/7. You …
This kid is far more popular than I will ever be! Look at how many people “like” my status and how many comments it got.I felt on top of the world sharing such a huge accomplishment and seeing just how many people who are pulling for our girl.Lily has yet to sit up again on …
I was sitting with my laptop on my lap writing a post, a lot of complaining about me getting strep (again!), then having an allergic reaction to an antibiotic (bad!), but while I am writing and talking to Andrew on the phone (yes I am that talented) I see out of the corner of my …
Now Andi Jane is the 4th member of this family to get strep. Like are you kidding me? And of all the weeks she gets sick the week of VBS. She has loved VBS, she has gotten so much out of VBS. (VBS is vacation bible school that goes all week long, it is at …
I had to take all three kids to Walmart yesterday, yes I do go to Walmart for certain things that although are certainly more fun to browse at Target for, they are cheaper at Walmart.I wasn’t going for much so I was pushing Lily with Andi on her lap while holding Ollie in my arms. …
Trying to wrap up my weekend at the Rett Syndrome Family Conference is not an easy task and not a task I have been interested in doing. Well I take that back, I really want to write it, I just want it written and posted with out me putting any effort into it. Is that …
Calm Amongst the Chaos 