Calm Amongst the Chaos

Mama of 5 seeking calm in the chaos

So we upped the study drug again, and so far so good. I don’t want to jinx it, but maybe this is the right dose. It is a prety high dose, no wonder, but so far so good.Lily and I leave on Sunday to head on to SLC. I will take a laptop with me …

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I am a little annoyed right now about the whole fact of this study. Lily had a seizure this morning before she got on the school bus and it made her tired and spacey. She didn’t have those until we weaned her from the Vigabitrine and I don’t think her being on Topamax only is …

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