I am so excited! I booked a trip to Colorado Springs for Memorial Weekend! All by myself! Why, you ask? Because that is where the Rett Syndrome Family Conference is! Bringing my family is not an option, so Andrew is staying home with the kiddos. The coolest thing about it all is that I was …
My goodness I haven’t posted much lately. I need to, I should have. Should I tell you about my lack of time, or do you really care? Excuses, like butt holes, we all have them and they all stink.We went to neuro last week and besides being called his platinum VIP patients, it was a …
Good bye Nurse Jennie. You came when Lily was 4 and still in pre school. Andi Jane wasn’t yet 2. You saw our family grow from 4 to 5. You saw us at our best and at our worst. You mourned with us the loss of our beloved dog Hailey, you were a nurse to …
Courtesy of Meghan Green Photography:Andi Jane was really the only one into it that morning, but these are all still so sweet!
I just finished The Book Thief and I am in the mood to title my blog like each title of that book.I have not updated and I apologize. Spring break invaded our lives and like a tornado it messed everything up.Grandma Cheryl came 2 weeks ago for AJ’s big number 5 birthday and boy did …
Not one sound. Lily rides the horse barely makes a noise. Lily comes home and has speech therapy where a sound would be most appropriate/appreciated. Lily refuses to even hum for music therapy who follows speech. Now I am trying to get some work done, Oliver is asleep in his crib in his room, Andi …
March 17th 2005 we entered the world of parenting a “neuro typical” child and our world changed! It has been filled with laughs, smiles, tantrums, and lots and lots of energy. Being Andi Jane’s parents has been such a new learning experience and what fun we are having along the way!We love you!!! (here is …
Ok this economic crisis is really starting to get on my nerves.A couple days ago I got a letter from the place Lily has gone to summer school for the past 4 summers. It has been a safe place to send her. A fun place to send her. A place I trusted her to spend …
Andi Jane: “Mom! Look!”Me: “What?”AJ: “That show, it’s called Diary of a Wimpy Kid”Me: “Yeah….and?”AJ: “I get that sometimes, hu?”Me: “What?”AJ: “Diary”Me: blank stare while I figure out what she is talking about… “oh yeah, only when you eat your boogers”
I haven’t posted much lately, not for a lack of things going on and not for a lack of words. I was honored by being asked to write one of the letters welcoming families to the CDKL5 diagnosis on the new CDKL5 website (set to launch end of March!! No worries I’ll link it up …
Calm Amongst the Chaos 