I’m sitting here while Lily is being double teamed by OT and Speech. Andi is playing with the therapists toys and Oliver is trying to do what ever Andi is doing. She doesn’t want to share and I am already getting a glimpse into the world of sibling rivalry, something I have managed to avoid …
Activia…WOW! Lily has always had a problem with pooping. She is most often constipated, but there are times where she is the exact opposite, usually one or the other. We have tried pretty much everything. Most supplements make her let’s just say, a big mess. I hate having to use suppositories and I also hated …
I just wanted to give a quick Lily update since she is the reason for this site. Hence the name. 🙂Lily is doing pretty good. She is back to having her 4 o’clock meltdowns that we haven’t seen for a few months. It is like a cycle, she gets upset and has more myoclonic jerks …
Last week Andrew’s brother, wife and kiddos came to visit and we had an amazing time! So much fun! They came during the week and surprisingly enough daddy was able to take a lot of time off and we all hung out. The kids hasn’t all been together since November of 2007 so it was …
The long awaited three weeks has come. Well technically I saw Lily’s first seizure on three weeks, two days but we were pretty sure she was having them before those full body convulsions, so I think I can start breathing a little easier. Oliver is well. NOT having seizures and seems to be getting more …
All is well. I had a scare on Friday with some crazy bleeding and ended up in the ER. Thankfully my body was doing what it was supposed to and I didn’t have to have a D&C like the ER Doc said I would.Otherwise we are all well. This was the first morning I had …
I am so praying 2009 will far surpass 2008. No crappy study for Lily. Hopefully we will get that report with her actual diagnosis within this month. We will have a new baby! I pray he is healthy and shows us what boys are all about! Andi will enter her 4th year and I am …
So yesterday we went to Hippo therapy (horse) and after grooming and getting out to the arena we put Lily on the horse and we both (PT and myself) thought something looked weird. Then PT says, “we forgot Lily’s pads!” I said “wanna hold her and I’ll run and get them” she said “no, let’s …
August 28th 2002 Welcome to the world Princess LilyAnna Blu! Only after 29 hours of labor your beautiful little self came into the world, pink and crying. We had no idea what you had in store for us. Only a few weeks later we found ourselves back into the hospital doing test on my baby …
Happy Birthday my sweet LilyAnna Blu! I love you!August 28th 2002 my girl came into this world and 6 years later I just can’t believe all we have gone through.I love you more than you could ever imagine and rocking you to sleep in the rocking chair last night had to be my highlight of …
Calm Amongst the Chaos 