I am not sure if I made an offical announcement but now is a better of time than any…..I am now a board member for the IFCR (International Foundation for CDKL5 research)!I’m thrilled to be a part of these special woman doing something to make a change for the future of CDKL5. I won’t push …
Vegas came upon us fast and hard. It was one of those are we going or aren’t we going. Where are we staying, who is going? My beautiful niece, Ariel, turned 21 on November 10th and since her 18th birthday she has been saying “we are going to Vegas for my 21st right?!” Well it …
I can’t brag about my friend LIZ enough! We showed up with a sleepy Lily and well a 2 year old Oli. It was about 90 that day yet I made us pretend it was in the 70’s and we left the session thinking no way we got anything! But in true Lizzy fashion she …
I suck at posting lately. Total suckage.We had a heck of a time with Lily getting over that surgery. It was awful. 2 full weeks of pain and an entire week to get her to poop. It was exhausting for all parties involved. Lots of crying. For all parties involved.She is basically back in action, …
WWYD? WWJD? WWPD? The last one is what would Phil do. Phil, you know, Phil. Phil from Modern Family. Phil. We all love Phil and some of us, maybe those of us who have watched the show from the day it premiered, the day you anxiously awaited after seeing the commercial for the show showing …
Well I post Lily’s recovery on Saturday to have her wake up on Sunday with a 102.5 fever and her just miserable. The on call Dr (yes you better believe I called him when he was on the golf course) said that is was normal and they get worse before better. Well he wasn’t kidding! …
Lily’s surgery was 10am on Tuesday morning. The surgery was the quickest one she has ever had and we were back in recovery in no time just watching her beautiful face sleep. She always takes a long time to wake up after anesthesia so we knew it would take her nearly an hour before she …
This was one of my most favorite jokes to tell as a kid. What did one tonsil say to the other tonsil? Hurry the Dr. is taking us out tonight. Insert laugh.You have to insert it because I can’t do it myself. Ugh. Thursday I miss a call at 4:30pm to schedule Lily’s surgery, I …
We go to a pretty awesome church. Like the most awesome. Just this past Sunday we came to church knowing that we will leave barefoot. This was our 3rd Sept doing this. We did have fair warning and came to church with our shoes on, plus a bag full of others, and we left them …
Andi Jane has been bugging me to sign her up for gymnastics. I had been stalling since she like most politician she is a flipper. One day it’s basketball, the next is synchronized swimming. I wanted to make sure I was not better off flushing money down the toilet, but she was persistent and her …
Calm Amongst the Chaos 